Showing posts with label #myalgicencephalomyelitis. Show all posts
Showing posts with label #myalgicencephalomyelitis. Show all posts

Saturday, May 12, 2018

Missing (Day 479)


Seduced  falling 
into that pleasure 
relative to pain  

a moment 
of unspooling
unwinding fibers

frayed ends easing 
through hardened 
knot twists

fever-burnt  
prickling 
in cavedark coolth  

buoyant  leaden  
bedded by a body 
unwilling to live  

still  unwilling to 
let go  of life  still 
missing  just missing


(c) 2018, by Hannah Six

Ophelia, Sir John Everett Millais
Via Wikimedia Commons

Friday, May 4, 2018

Making Hay (Day 471)


The body, befuddled, like a child,
does what it must, strains 
for language, listens to upsetting 
news, lifts and moves amidst clouds 
of dust and veils of heat, fog-filled 
head and unused muscles kicking 
in, as if they haven’t wasted most 
of the past year in bed. It works, 
sweats, bends, groans until 
it does not. Then, at home, at rest, 
an aftermath: poppy-resistant pain, 
sleepless, lingering hours spent 
prone, thirsty, hungry, longing for 
an unmanageable shower, listening 
to this befuddled body taking 
one
single 
breath


In.      

Out.


after another.
And the sun comes up. 
And it’s time
to drink coffee 
and try to do it all
over again. 


(c) 2018, by Hannah Six

Image: VViktor/Pixabay

Tuesday, January 2, 2018

Aura (Day 349)


Felt your presence 
    in my room 

      this morning, before 
I was fully aware, 

there,

pressing 
        like thumbs 
     against my eyelids, 

  and I knew:   you 
had come 

to spend the day
with me. 


(c) 2018, by Hanneah Six

Monday, July 24, 2017

Sunday, July 23, 2017

Spoons (Day 186)

Be careful how you spend them:
Too many in the morning will 
upend your day. Summer’s 
brilliant sunlight will come 
streaming through your 
windows, find you 
where you hide, 
and set your pale skin 
aglow, inside, there in your
bed. Your plans all scattered 
to the wind, because you needed 
rest instead. Once again, you gave 
them all away, far too early In the day.




(c) 2017, by Hannah Six 

(The Spoon Theory is a way to describe myalgic encephalomyelitis [ME], fibromyalgia [FMS], multiple sclerosis [MS] and other ‘fatiguing’ [major understatement, there] autoimmune diseases. Read about it here.)

Image: FaceGuard via Pixabay

Monday, July 10, 2017

In a Daze (Day 173)

Inside, more spacious,
emptier, room
to think. Silence, cool
and dark, a curtain 
drawn against 
the hysteria outside.
Sink into clear air.
Allow. Nothing more
than nothing, simply
exploring each breath.



(c) 2017, by Hannah Six

Amazing image by Andrew Preble 
(@apreble via Unsplash.com)

Sunday, July 9, 2017

Persephone in the Afternoon (Day 172)

I can see Persephone 
waving to me
as we pull our way 
toward the opposite shore. 
The crossing is dark,
barely lit by a spark,
that seems to glow
and grow from the deep.
For a moment, I'm blind,
afternoon light floods in
as I struggle to climb
out of sleep. Then again, 
and a whoosh, as our hull 
scrapes the ground—
with a rush we’ve emerged, 
from the night.
Sudden sunlight bursts free,
Yet, squinting, I see 
a dim, but heartbreaking, 
sight—lovely Persephone,
in a vanishing fog, motioning, 
still waving to me.


(c) 2017, by Hannah Six


Image: The Return of Persephone, Frederick Leighton, 1891

Monday, July 3, 2017

Not Now (Day 166)


There are stories to tell
But not here, not now,
At this time my brain
Won’t participate.

Maybe, when I’ve slept well,
My fog will clear and 
This slow train of thought 
Will accelerate.


(c) 2017, by Hannah Six

(Image: Le Pont de L'Europe, by Louis Émile Anquetin, 1889)

Saturday, April 1, 2017

On Hand-Washing Dishes During a Flare-Up (Day 73)

 

Under the hot water my hands 
feel better   bubbles enfolding
fingers and the muscular
swell at the base
of my thumb   three plates
done   each progressively heavier
tugging my hands 
toward the wide enamel
sink   the soapwater
maelstrom will suck each joint
gently through 
the drain and into the dark 
which eventually   I am told   surges
into the Chesapeake   there a cast
of immature blue crabs 
and a shimmering, darting school
of silversides will kiss
tickle peck nibble 
until nothing 
remains but a puzzle 
of porcelain bones.



(c) 2017, by Hannah Six

Friday, March 3, 2017

Instead (Day 43)



Just now, I thought
There's not a lot
Going on inside
My head.

This realized,
I recognized
The fog within
And said:

I just can't write
A poem tonight,
So I wrote this
Instead.

(c) 2017, by Hannah Six


For information about ME/CFS, visit:
http://solvecfs.org/what-is-mecfs/
#MECFS #MillionsMissing